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Individuals, Doctors, Researchers and Institutions listed below have all been active with GIST and SDH deficient GIST/cancers.  They have been involved with patient care, research, and in many cases were involved with "For Ian GIST Project".  Outside of academic medicine, organizations such as MITRA Biotech, Champions Oncology, PGD, and Store My Tumor were also participants.  In the case of MITRA Biotech, they offered their services free of charge for Ian.  Many of the researchers and institutions have promising proposals for further and new research.  "For Ian Foundation" hopes to be able to fund some of these efforts.  Also included are GIST and Pediatric GIST patient advocacy and information organizations who should be applauded for the support they provided during "For Ian GIST Project". 

The organizations and individuals below are not listed in any specific order

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Private Institutions

  1. Mitra Biotech, Woburn, MA

  2. PGD, Personal Genome Diagnostics

  3. Champions Oncology

  4. StoreMyTumor

Medical/Academic Institutions
and Clinician-Researchers 

  1. Dr. Arthur S, Tischler, MD, Tufts Medical Center

  2. Dr. Andrea Califano, Columbia University

  3. Gary K. Schwartz, MD, Columbia University Medical Center

  4. Cristina R. Antonescu, MD, MSKCC

  5. Ping Chi, MD, PhD, MSKCC

  6. Jonathan A. Fletcher, MD, DF/HCC

  7. Karel Pacak, D.Sc.,Ph.D.,M.D., National Institute of Health

  8. Constantine A. Stratakis, M.D., D(Med)Sc, National Institute of Health

  9. Sosipatros A. Boikos, M.D., Virginia Commonwealth University

  10. George D. Demetri, MD, Harvard

  11. Victor E. Velculescu, M.D., Ph.D., Johns Hopkins

  12. Akhilesh Pandey, M.D., Johns Hopkins Ph.D.

  13. Prof. Eyal Gottlieb, Technion

  14. Timothy P. Cripe, MD, PhD, Nationwide Children's

  15. Brian A. Van Tine, MD, PhD, Washington University, St. Louis

  16. Christopher L. Corless, MD, PhD, OHSU

  17. Jonathan C. Trent, MD, PhD, University of Miami, Sylvester

  18. Louis M Weiner, MD, Georgetown University

  19. Matt Van de Rijn, MD, Stanford

  20. Kevan M. Shokat, PhD, UCSF

  21. Tomoaki Kato, MD, Columbia University Medical Center

  22. Hanina Hibshoosh, MD, Columbia University

  23. Frederick Alexander, MD

  24. Michael C. Heinrich, MD, OHSU

  25. Yoram Palti, M.D., Ph.D., Novocure

GIST and Pediatric GIST patient advocacy and information organizations

  1. The Life Raft Group

  2. GIST Support International

  3. SDH-Deficient GIST Research Advocates

  4. PAWS - GIST Ckinic